National Organization for Rare Disorders (NORD)

The National Organization for Rare Disorders® (NORD®) is the leading independent, nonpartisan, nonprofit organization dedicated to improving the health and lives of over 30 million Americans living with more than 10,000 different rare diseases. In partnership with more than 350 disease-specific NORD Member patient organizations and 46 NORD Rare Disease Centers of Excellence across the country, NORD drives progress in rare disease research, care, and policy.

NORD began as a small group of patient advocates who formed a coalition to mobilize support to pass the Orphan Drug Act of 1983. For more than 40 years since, NORD has led the way in voicing the needs of the rare disease community — driving supportive state and federal policies, medical education, and patient-powered research — while also providing dedicated patient and family services for those who need them most. Learn more and get involved at rarediseases.org.